KANSAS CITY, MO — With profound sadness and heavy hearts, the family and friends of Michelle Howe-Long announce her passing on May 5, 2025, following a brave and agonizing battle with Stevens-Johnson Syndrome (SJS)/Toxic Epidermal Necrolysis (TENS), a rare and devastating medical condition caused by a 1-in-a-million allergic reaction to a medication. She was 42 years old.
Michelle’s sudden illness and ultimate passing have left a deep void in the hearts of those who knew and loved her. Known for her boundless compassion, radiant smile, and unwavering resilience, Michelle was a beacon of light in the lives of many. Her journey, tragically cut short, is a sobering reminder of the fragility of life and the extraordinary strength that can be found even in its most difficult moments.
Born and raised in Kansas City, Missouri, Michelle was a proud daughter of the Midwest. She was a graduate of Lincoln College Preparatory Academy and later earned her degree in social work from the University of Missouri-Kansas City. Driven by a passion for service and a deep empathy for others, Michelle dedicated much of her life to supporting underrepresented and vulnerable communities. Her career in nonprofit work, especially her advocacy for women’s shelters and youth mentorship programs, left a lasting mark on the city she called home.
Those who knew Michelle speak of a woman who radiated warmth and sincerity. Her laugh was contagious, her advice always thoughtful, and her presence endlessly comforting. A devoted mother, loving wife, and cherished friend, Michelle had a gift for making people feel seen and valued. Her home was a sanctuary of love, filled with laughter, soulful conversations, and the welcoming aroma of her famous Sunday dinners.
Michelle’s diagnosis with Stevens-Johnson Syndrome/Toxic Epidermal Necrolysis came without warning. What began as a mild reaction rapidly progressed into a full-blown medical crisis, with Michelle courageously enduring weeks of pain and medical interventions. Despite the tireless efforts of her care team and her own indomitable spirit, her body could not overcome the trauma of the illness. Her loved ones were by her side in her final moments, holding her hand and surrounding her with love.
Stevens-Johnson Syndrome and TENS are rare and often misunderstood conditions that affect fewer than 2 in a million people each year. Michelle’s family hopes to raise awareness about these life-threatening reactions to common medications and encourage further research, advocacy, and education so that others might be spared such suffering.
Michelle is survived by her husband, Jordan Long; their two children, Ava and Marcus; her mother, Darlene Howe; her sisters, Renee and Latasha; and a wide circle of extended family and close friends who adored her deeply. She was preceded in death by her father, Leonard Howe.
A celebration of Michelle’s life will be held on Saturday, May 10, 2025, at the Unity Temple on the Plaza in Kansas City. The service will begin at 11:00 AM, with visitation starting at 9:30 AM. The family invites all who knew Michelle to join in honoring her memory, sharing stories, and continuing her legacy of love and compassion.
In lieu of flowers, the family requests donations be made in Michelle’s honor to the Stevens-Johnson Syndrome Foundation or to local women’s and children’s charities, causes she championed throughout her life.
Though Michelle’s time on earth was far too short, her impact was immense and enduring. She will be remembered not just for how she died, but for how she lived — with courage, grace, generosity, and unshakable love.
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